Pancreatic Cancer Action Network (PanCAN) (Pancreatic Cancer)

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Medal-big-2011
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Pancreatic-cancer-action-network-pancan-pancreatic-cancer
Headquarters Location: Manhattan Beach, CA
Founded: 1999


Mission: The Pancreatic Cancer Action Network is a nationwide network of people dedicated to working together to advance research, support patients and create hope for those affected by pancreatic cancer.


Tags: cancer, pancreatic cancer, research, patient, support, community outreach, advocacy, resource, information, 2011


Pancreatic-cancer-action-network-pancan-pancreatic-cancer
Story: n 1994, sixteen years ago, I was diagnosed with pancreatic cancer. That November, I had an eight and a half-hour surgery. My surgeon was so elated that he pushed me into ICU himself, talking to me all the way as… Read the full story.

Expert Reviews: Evidence of Impact
The Pancreatic Cancer Action Network has been very effective in raising awareness about pancreatic cancer and has had a strong history of good research funding, advocacy, and education.
See the complete expert review.

Leadership
Pancreatic-cancer-action-network-pancan-pancreatic-cancer Julie Fleshman. Julie Fleshman serves as the Pancreatic Cancer Action Network’s President and CEO. In 1999, Julie lost her father to pancreatic cancer and is committed to change the course of this disease. She became the organization’s first full-time staff person and Executive Director in April 2000. In July 2004, the Board of Directors appointed Julie as President and CEO of the… See full bio.


Transparency Information
Silver-big
This organization has earned the GuideStar Participation Level Silver, demonstrating its commitment to transparency (learn more)


Financial Data
Charity Navigator Rating: 4stars (profile)
Total Revenue:
$11,609,243


From the Nonprofit
The nonprofit has not added any comments yet. If you are a representative of this nonprofit and would like to leave a comment, please email us at feedback@myphilanthropedia.org with your request.


Contact Info
Website:
E-Mail:
info AT pancan.org
Phone:
877-272-6226
Facebook:
Follow_fb
Address:
1500 Rosecrans Ave, Suite 200
 
Manhattan Beach, CA 90266, USA
Twitter:
Follow_twitter


Pancreatic-cancer-action-network-pancan-pancreatic-cancer Story: n 1994, sixteen years ago, I was diagnosed with pancreatic cancer. That November, I had an eight and a half-hour surgery. My surgeon was so elated that he pushed me into ICU himself, talking to me all the way as I tried to awaken. I shall never forget the words: “Hurry and wake up, there has been a miracle!” For the next month, I recall the many professionals, my dear family, my support groups back home praying – and their emotional outbursts when I finally returned to the schools I had developed over the last 40 years. I learned the fullness of love that so many people are capable of. But most of all, I learned about myself and a spiritual life that I only thought I had before. I have a desire that I developed while in the hospital: to be an advocate; to inspire a survivor's attitude in any and all patients who are awaiting surgery, or are healing. I had to work for a while, and still feel so very grateful that I have this compassion. Perhaps it is likened to some post-traumatic feelings, because not every patient is to survive this sneaky killer – this quiet and silent disease. While in the hospital that month, I learned that survivors of colon and breast cancer are given permission to be advocates to patients, so I requested if I could also speak to a survivor with a similar diagnosis. I realize that the doctors could not tell me they had no survivors or advocates for my particular cancer. It would be quite depressing to be told how few survive. I want to share this hope with anyone. I am in my 16th year of my new life; of my very active, very fun, very blessed-life. I have not only remained the grandmother of three boys who are now 19, 11, and 24 year-olds, but have the joy of two more little ones, now eight and five years old. My cup runneth over!

Expert Reviews of Pancreatic Cancer Action Network (PanCAN) (Pancreatic Cancer)

Evidence of Impact Summary:

The Pancreatic Cancer Action Network has been very effective in raising awareness about pancreatic cancer and has had a strong history of good research funding, advocacy, and education.
See expert comments.

Organization Strengths Summary:

Experts have stated that this organization has been effective because of its strong leadership and its effective marketing and advocacy campaigns.
See expert comments.

Areas for Improvement Summary:

According to experts, this organization could improve by altering its focus, working on a stronger national image, and diverting more time to fundraising.
See expert comments.

Expert Comments: Evidence of Impact

Select the boxes to display the results according to expert type.

Show:
X
Foundation Professionals (F)
X
Researchers and Faculty (R)
X
Nonprofit Senior Staff (N)
X
Other (consultants, journalists, policy makers) (O)

Great Fundraising for Research

O
In the 12 years that the Pancreatic Cancer Action Network hired its first staff person, they have: 1. Directly funded millions of dollars of research which has been highly impactful (for example, their funding helped develop the first mouse model of pancreatic cancer); / 2. Dramatically increased the awareness of pancreatic cancer in the general public; / 3. Increased the public funding for pancreatic cancer research; 4. Developed a large and passionate group of grassroots advocates who are highly effective at spreading their message; 5. Provided excellent patient services through their call-line, clinical trial matching and patient information (print/website).

Good Research Funding, Education, and Advocacy

R
Pancreatic cancer causes nearly as many deaths per year as colon cancer, yet has only a fraction of the attention and research dollars devoted to it. PanCAN seeks to correct this through advocacy, education, and research funding.

Patient Empowerment

N
Pancreatic cancer is the most deadly cancer - very few people survive at all. Yet PanCan has promoted a vision of hope, progress, and patient empowerment.

Raising Awareness

O
They have increased funding and awareness around Pancreatic cancer through celebrity tie-ins and a well-known name. They have great patient support and education.
N
They have made great strides in raising awareness of pancreatic cancer in a very short time.
N
PanCAN's messaging is clear, concise, and bold. They have effectively remained at the top of the ladder for service to pancreatic cancer patients & families, and for research funding.

Strong Influence on Congress

N
This group has succeeded in getting Congress and the cancer community to increase attention to the deadliest cancers, including pancreatic cancer.

Leader in Cancer Advocacy

O
Very solid pioneer in the area of advocacy for pancreatic patients. As far as I know, they have a good reputation for efficiency and quality service, and they take reasoned and useful positions on policy matters.

Model for Other Advocacy Groups

N
PanCAN is a model for other advocacy groups looking to make a real impact in the fight against disease. They directly fund research at levels that are astonishing. They ARE the driving force behind pancreatic cancer research in this country. They do their best to provide support and answers for patients and families for a disease that does not have many good answers. Their leadership from the top down is phenomenal. Their PALS line was a model for my organization's own helpline. Furthermore, they are incredibly supportive of other advocacy groups (they "play well in the sandbox").


Expert Comments: Organization Strengths

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Show:
X
Foundation Professionals (F)
X
Researchers and Faculty (R)
X
Nonprofit Senior Staff (N)
X
Other (consultants, journalists, policy makers) (O)

Great Leadership and Staff

O
The leadership provided by Julie Fleshman has been stellar. As its first hire, she has grown the organization through its start-up phase to a mid-sized non-profit with an annual budget of > $10M. Their research agenda drives all of their policy issues, which is a smart way to focus.
N
They have a strong long term leadership and staff that are passionate about the cause. They have grown tremendously in a very short time.
N
This group has strong leadership. It also has an impressive advocacy staff.
R
For a niche organization they have very forward thinking leadership and vitality.

Strong Advocate

R
Recent rapid increases in activities show that the organization is capable of achieving its stated goals. PanCAN serves as the main public spokesman for victims of this highly fatal disease, that otherwise would lack advocates.
O
They have consistent leadership and are well known among advocates. The organization works well with others.

Great Marketing

N
Their marketing is admirable - clear, easy to read, easy to understand resources are provided to patients and loved ones.


Expert Comments: Areas for Improvement

Select the boxes to display the results according to expert type.

Show:
X
Foundation Professionals (F)
X
Researchers and Faculty (R)
X
Nonprofit Senior Staff (N)
X
Other (consultants, journalists, policy makers) (O)

More Fundraising

R
It needs more financial support for research and public outreach. The high mortality rate of pancreatic cancer has meant a paucity of survivors that can be spokespeople for the cause of curing pancreatic cancer and improving treatment and outcome. Pan CAN must speak for those who cannot speak for themselves.
N
They should raise more money and fund more research.
R
They need to be better at raising funds to support a research initiative.

Possibly Overstretched

N
They do a lot as a single organization. They might wish to consider peeling off a 501c4 for their lobbying activities so the 501c3 can be concentrated on the patient education/outreach and research funding.

Stronger National Presence

O
They are perceived as a West Coast group while actually being a national group.

Broader Focus

N
The group could broaden its focus.


Leadership

Pancreatic-cancer-action-network-pancan-pancreatic-cancer
Julie Fleshman
President & CEO
Julie Fleshman serves as the Pancreatic Cancer Action Network’s President and CEO. In 1999, Julie lost her father to pancreatic cancer and is committed to change the course of this disease. She became the organization’s first full-time staff person and Executive Director in April 2000. In July 2004, the Board of Directors appointed Julie as President and CEO of the organization. The Pancreatic Cancer Action Network has grown to a staff of over 70, with offices in Los Angeles, CA and Washington, D.C and is providing programs to people across the country. Under Julie’s leadership, the Pancreatic Cancer Action Network has laid the groundwork to make true inroads on this disease. The organization’s advocacy and grassroots efforts have led to a 400% increase in federal funding for pancreatic cancer research and the organization has funded 66 research grants across the country. Over 50,000 patients and families have been served through the Patient and Liaison Services program. Its grassroots network has grown to 75 volunteer affiliates, and in 2006, its first international affiliate in Japan opened. Julie graduated from Santa Clara University School of Law and Leavey School of Business in December 2000 with a JD/MBA degree. Julie graduated Magna Cum Laude from the University of California at Santa Barbara in 1997 with a B.A. in Law & Society and was awarded most outstanding graduating senior in the Law & Society program. She also studied abroad at Oxford University and in Tokyo, Japan.

From the Nonprofit

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