The Arc of the US

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The-arc-of-the-us
Headquarters Location: Washington, DC
Founded: 1950


Mission: The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.


Tags: intellectual disabilities, developmental disabilities, advocacy, public policy, research, employment, job training, 2011



The-arc-of-the-us
Story: The Arc has a rich history spanning 60 years and marked by accomplishment. We continue to carry out the mission and vision of people with intellectual and developmental disabilities, as well as their parents and siblings. In 1950, a small… Read the full story.

Expert Reviews: Evidence of Impact
The Arc has, since 1950, advocated for children and adults with intellectual disabilities. The Arc provides national, state and local advocacy support for people with disabilities. They have not only changed the way the public views people with intellectual disabilities, but they have also helped promote the passage of disability legislation. They focus on quality of life, advocacy, criminal justice, human & civil rights, and self-advocacy. Their work has given people with disabilities the opportunity to become more socially connected, better educated and more successfully employed.
See the complete expert review.

Leadership
The-arc-of-the-us Peter Berns. Peter V. Berns is a nationally recognized nonprofit sector leader and public interest lawyer. He is the Chief Executive Officer of The Arc, the world’s largest community-based organization of and for people with intellectual and developmental disabilities. Berns has been at the helm of The Arc since July, 2008. Under his leadership, the organization has charted an ambitious course of… See full bio.


Transparency Information
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This organization has earned the GuideStar Exchange Seal, demonstrating its commitment to transparency (learn more)


Financial Data
Overhead Ratio:
23.10%
Total Revenue:
$10,005,160


From the Nonprofit
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Contact Info
Website:
E-Mail:
berns AT thearc.org
Phone:
202-534-3700
Facebook:
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Address:
1660 L Street, NW, Ste 301
 
Washington, DC 20036, USA
Twitter:
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The-arc-of-the-us Story: The Arc has a rich history spanning 60 years and marked by accomplishment. We continue to carry out the mission and vision of people with intellectual and developmental disabilities, as well as their parents and siblings. In 1950, a small group of parents and other concerned individuals came together to act as voices for change. At the time, little was known about the condition of intellectual disabilities (at the time referred to as ‘mental retardation’) or its causes. There were virtually no programs and activities in communities to assist in the development and care of children and adults with intellectual disabilities or to support families. It was common at that time for doctors to tell parents that the best place for their child was in an institution. Emboldened by their collective desire to raise their children in the home and their stubborn refusal to accept that institutionalization was the only option, The Arc’s founders fought even harder. Like every parent of any child, they wanted more for their children. They wanted their children to lead fulfilling lives out in the community and not shuttered away in dark institutions. It was in that spirit that The Arc was born.

Expert Reviews of The Arc of the US

Evidence of Impact Summary:

The Arc has, since 1950, advocated for children and adults with intellectual disabilities. The Arc provides national, state and local advocacy support for people with disabilities. They have not only changed the way the public views people with intellectual disabilities, but they have also helped promote the passage of disability legislation. They focus on quality of life, advocacy, criminal justice, human & civil rights, and self-advocacy. Their work has given people with disabilities the opportunity to become more socially connected, better educated and more successfully employed.
See expert comments.

Organization Strengths Summary:

The Arc has been praised for its great reach, strong advocacy work, and its talented leadership. The Arc leads by articulating a future for people with intellectual disabilities and catalyzes both public and private support through the active role it takes from a grassroots to national levels.
See expert comments.

Areas for Improvement Summary:

Experts in the field believe the Arc's programs could be improved. According to experts, the Arc needs to focus more on adults with disabilities and realistic solutions for happy living. Community based socialization programs is an important area where the Arc can expand.
See expert comments.

Expert Comments: Evidence of Impact

Select the boxes to display the results according to expert type.

Show:
X
Foundation Professionals (F)
X
Researchers and Faculty (R)
X
Nonprofit Senior Staff (N)
X
Other (consultants, journalists, policy makers) (O)

Lasting Improvements

F
The Arc has made great strides in global work for people with disabilities producing lasting improvements that address the core problems of people with developmental and intellectual disabilities.
N
An organization with a long history and impressive accomplishments. The ARC is probably the major player behind de-institutionalization, and their strong advocacy for their children (parents are very involved in ARCs) has pushed many states to provide funding for community based services and residences. Most ARCs have parents on their boards of directors. They offer resources and TA to chapters across the US and stay with the times. They understood and provided guidance for guardianship before families even knew that this could be essential for estate planning and future care. Their resources are invested in advocacy and research, and partnerships make this work more effective. The availability of federal funding seems to drive some national initiatives, such as Autism Now and the school to work program. Their location in Washington DC is great for advocacy work.

Wide Array of Services

F
The Arc is a national grassroots organization that provides advocacy for the advancement of services and supports for people with intellectual disabilities. There is hardly a geographical area in the US that is not touched by the Arc. They have evolved with the changing times to meet the needs of customers. It is an organization that involves both the individual with a disability and their family members. The Arc provides training to professionals, a forum for exchange of information and so much more to so many across the US.
N
The ARC is the nation's touchstone for individuals with intellectual disabilities and their families. The ARC has become the national center for information dissemination. In addition, its leadership has committed itself to ensuring that Washington keeps people with disabilities in the forefront when making important employment, health care and related decisions.

Trust

F
The Arc is very good with following and impacting legislature, conducts good research and is effective at sharing of information. The Arc merits trust and serves as a good resource for families.

Strong Advocacy

N
The Arc has, since 1950, advocated for children and adults with intellectual disabilities. The Arc provides national, state and local advocacy support, has not only changed the way the public views people with intellectual disabilities, it has also helped promote the passage of disability legislation. They work in the areas of quality of life, advocacy, criminal justice, human & civil rights, inclusion and self-advocacy. Their work has given people with disabilities the opportunity to become more community/socially connected, better educated and more successfully employed.
N
The Arc offers great services and impacts public policy.
N
This agency provides recreation opportunities for our population. They have also been advocating for people with disabilities for many years an they are a great source of information if needed.
N
The Arc has made significant impact on advocacy.
N
They do an excellent job in advocacy issues in Washington DC and state capitols.

Coalition

N
The Arc's outstanding advocacy work, and the fact they work in coalition with other nonprofits, demonstrate its vast impact.

Employment & Housing

O
The Arc has programs for the developmental disabled including: employment, housing, and intermediate care facilities for the developmentally disabled.

Focus on Developmental Disabilities

N
The Arc is primarily an organization of families of people with developmental disabilities. This allows a focused impact on the narrower group but does not have a significant effect for people with other types of disability.


Expert Comments: Organization Strengths

Select the boxes to display the results according to expert type.

Show:
X
Foundation Professionals (F)
X
Researchers and Faculty (R)
X
Nonprofit Senior Staff (N)
X
Other (consultants, journalists, policy makers) (O)

Strong Leadership

F
The Arc has strong executive national leadership and program focus, especially with new program area focusing on autism.
N
The Arc has tremendous leadership and knowledge of legislation.

Great Marketing

F
The Arc has evolved with even their name (at one time, the "r" stood for retarded, now a label that is no longer used). Although they stood to lose substantial name recognition, they abandoned this labeling and continued to achieve wide spread acclaim for their change in logo. They are the most widely recognized organization representing people with disabilities.
R
The Arc has strong visibility on important issues.

Strong Advocacy

N
The Arc is dedicated to providing the political leadership and passion for advocacy on behalf of people with disabilities. They are a stand-out organization in Washington D.C. and are respected for their strength as an organization that believes in People First. The Arc leads by articulating a future for people with intellectual disabilities and catalyzes both public and private support through the active role it takes from a grassroots to national levels.

Strong Network

N
The Arc benefits from its national network.

Family Focus

N
They were started by parents of children and adults with disabilities, and have maintained a family focus.

Great Reach

N
They provide activities for all levels of individuals no matter what their disabilities. They also offer these activities to other agencies so their people and share in the enjoyment of something that they like.

Strong Staff

O
Strengths of this organization include the leadership and the volunteers that organize the fundraising for the centers. The employees are exceptional and are recognized by the organization.


Expert Comments: Areas for Improvement

Select the boxes to display the results according to expert type.

Show:
X
Foundation Professionals (F)
X
Researchers and Faculty (R)
X
Nonprofit Senior Staff (N)
X
Other (consultants, journalists, policy makers) (O)

Congruency

F
The Arc should become more transparent and have more cohesion among local chapters across the country.
F
The Arcs vary a great deal from area to area with regards to what services they provide. It would be of benefit to have funding available from the National Arc to assist smaller Arcs grow larger or expand services to better meet the needs of those nearby.
R
Many of its chapters are weak and are actually regressive yet use The Arc name.

Programs

F
The Arc needs to focus more on adults with disabilities and realistic solutions for happy living. As their own research shows, not many adults with disabilities are employed. Community based socialization programs will be key to their happiness and needed family respite.
N
The Arc needs to continue to broaden its future vision and work more closely with habilitation organizations where choice is primary factor. Many individuals prefer to work in a more sheltered (for a lack of a better word) situation while many prefer to be placed in community based jobs or competitive employment.
O
The incentives to stay employed should be increased in pay or salary. In order to keep really fantastic people on staff the pay should be a great benefit of the job. The other area is level of knowledge, I feel very confident in their training but I would like to see them increase in knowledge of the consumer (health, life skills and creativity, public relations, family involvement issues and recreation within the means of the consumer) and in the community be willing to gain support throughout the community.

Access

N
They could provide more pick up points so that people further away can also get these opportunities as well.

Develop Financial Transparency and Advocacy Agenda in More Detail

N
Their financial transparency and advocacy agenda could be developed in more detail and be more prominent on the website.

More Local Profile

N
they need more of a local profile.

Marketing of Name Change

F
This organization had to adjust to changes in the perception of what "mental retardation" is and did so by changing its name. I don't think that the marketing of the name change was as effective as it could have been and so name recognition has taken longer than it should. I think the mission has expanded but, honestly, I don't know what the organization does now. It did have a huge impact in the 60s and 70s in advocating for people with disabilities and played a major role in many of the educational changes that have taken place since 1976.

Cohesion

N
The Arc of the US operates as both a provider organization and an advocacy organization. As such they may be in conflicting roles when they attempt to speak or advocate for persons with disabilities. This can be particularly problematic when lobbying for the continuation of program models, such as sheltered workshops, that restrict people to employment in non-integrated settings.


Leadership

The-arc-of-the-us
Peter Berns
Executive Director
Peter V. Berns is a nationally recognized nonprofit sector leader and public interest lawyer. He is the Chief Executive Officer of The Arc, the world’s largest community-based organization of and for people with intellectual and developmental disabilities. Berns has been at the helm of The Arc since July, 2008. Under his leadership, the organization has charted an ambitious course of progress, innovation and change with the development of a Strategic Framework for the Future of The Arc. As the leading provider of vital services and support for families and individuals, The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes. The Arc works daily on behalf of the more than 140,000 members and in concert with a nationwide network of more than 730 state and local chapters across the nation. Before joining The Arc, Berns was the Executive Director of the Maryland Association of Nonprofit Organizations, a post he held for 16 years. In that capacity, he built the Association from a start-up to a position of prominence in the nonprofit community, nationally, with nearly 2,000 members of all sizes, all sectors and from all regions of the state. In addition, he served as Chief Executive Officer of the Standards for Excellence Institute since its inception in 2004. Berns came to The Arc with a track record of success in the areas of nonprofit management, governmental relations and advocacy. As a public policy advocate, he was critical to reforming state and federal Medicaid regulations improving life for persons with disabilities and their families. He was named to the Nonprofit Times Power and Influence Top 50 list in 2000, 2002, 2003, 2004 and 2005. His previously held positions include Deputy Chief of Consumer Protection in the Maryland Attorney General’s Office as well as Assistant Attorney General and, earlier in his career, Staff Attorney/Fellow at the Institute for Public Representation at the Georgetown University Law Center. In May 2011, President Barack Obama appointed Berns to the President’s Committee for People with Intellectual Disabilities, which will provide advice and assistance to President Obama and the Secretary of Health and Human Services on a broad range of topics that impact people with intellectual and developmental disabilities and their families. Berns received his JD, cum laude, from Harvard Law School and has an LLM in advocacy from Georgetown University Law Center. He received his BA in psychology, magna cum laude, from the University of Pennsylvania. He and his wife, Melissa Zieve, reside in Baltimore, MD with their four children.

From the Nonprofit

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