Friends of Cancer Research (FOCR) (Multiple Cancer)

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Friends-of-cancer-research-focr-multiple-cancer
Headquarters Location: Washington, DC
Founded: 1996


Mission: Friends of Cancer Research (Friends) is a cancer research think tank and advocacy organization based in Washington, DC. Friends is a leader in developing partnerships and advocating for policies that will get treatments and therapies to patients in the safest and quickest way possible. Working with federal health agencies, congressional leadership, academic research centers and private sector industry, Friends continues to create innovative educational, policy, and scientific approaches to improve health outcomes and cancer care. www.focr.org

Tags: cancer, research, think tank, advocacy



Friends-of-cancer-research-focr-multiple-cancer
Story: Friends of Cancer Research (Friends) is a cancer research think tank and advocacy organization based in Washington, DC. Friends is a leader in developing partnerships and advocating for policies that will get treatments and therapies to patients in the safest… Read the full story.

Expert Reviews: Evidence of Impact
Friends of Cancer Research has had a particularly strong influence on pushing for policy changes among Congress and government agencies.
See the complete expert review.

Leadership
Friends-of-cancer-research-focr-multiple-cancer Ellen V. Sigal/ Jeff Allen. Ellen V. Sigal, PhD, is Chairperson and Founder of Friends of Cancer Research (Friends), a cancer research think tank and advocacy organization based in the Washington, DC.

Friends is a leader in developing partnerships and advocating for policies that will get treatments and therapies to patients in the safest and quickest way possible. Friends works with federal health agencies, Congressional… See full bio.


Financial Data
Overhead Ratio:
12.42%
Total Revenue:
$1,449,765


From the Nonprofit


Dec 19, 2011
For the list of our full board member, click here Read More.



Contact Info
E-Mail:
info AT focr.org
Phone:
202-944-6700
Facebook:
Follow_fb
Address:
1800 M Street NW, Suite 2050 South
 
Washington, DC 22202, USA


Friends-of-cancer-research-focr-multiple-cancer Story: Friends of Cancer Research (Friends) is a cancer research think tank and advocacy organization based in Washington, DC. Friends is a leader in developing partnerships and advocating for policies that will get treatments and therapies to patients in the safest and quickest way possible. Working with federal health agencies, congressional leadership, academic research centers and private sector industry, Friends continues to create innovative educational, policy, and scientific approaches to improve health outcomes and cancer care. Founded to mark the 25th Anniversary of the National Cancer Act, Friends set out to organize highly effective public policy forums that bring together researchers, leaders of the FDA, NCI, and NIH, industry, elected officials, and patients to discuss critical issues and develop collaborative strategies to assist in the translation of research to treatments and therapies. When she founded the organization in 1996, Dr. Ellen Sigal saw a compelling need to increase public awareness and support for cancer research and for increased scientific capacity across all federal health agencies. At that time Ellen was a Presidential Appointee to the National Cancer Advisory Board along with Marlene Malek, who joined Ellen in 1996 as President of Friends. Friends of Cancer Research began tackling their mission by holding educational “town halls” across the nation, bringing leaders from science, industry, and academia to the district or home state of key members of congress. By doing so Ellen and Marlene were able to not only educate Senators and Congressmen and women, but create new champions for biomedical research. Now, 15 years later, Friends of Cancer Research continues to expand upon its expertise in developing unique partnerships and creating a more open dialogue among both public and private sectors. As a respected independent think tank, Friends is able to cut through bureaucratic red tape, put aside partisan politics and engage all stakeholders, producing real results.

Expert Reviews of Friends of Cancer Research (FOCR) (Multiple Cancer)

Evidence of Impact Summary:

Friends of Cancer Research has had a particularly strong influence on pushing for policy changes among Congress and government agencies.
See expert comments.

Organization Strengths Summary:

According to experts, FOCR has been effective because of its good staff and leadership and the collaborations that it has pursued.
See expert comments.

Areas for Improvement Summary:

Experts have voiced concerns over the relatively low visibility of the organization and the lack of diversity of funding sources.
See expert comments.

Expert Comments: Evidence of Impact

Select the boxes to display the results according to expert type.

Show:
X
Foundation Professionals (F)
X
Researchers and Faculty (R)
X
Nonprofit Senior Staff (N)
X
Other (consultants, journalists, policy makers) (O)

Strong Treatment Development

N
Friends of Cancer Research is a leader in advocacy regarding FDA issues impacting cancer treatment development.

Good Influence on the Government

N
They have been strong in Congressional engagement.

Good Services for Patients

O
This organization is far better than most at blending compassionate assistance to individual patients and family members with a sophisticated technical understanding of the disease, treatment options, and technically complex policy issues.

Impact in their Work

O
They have evidence of impact.

Leader in Cancer Advocacy

N
FOCR is a leader in the cancer advocacy community. They have created and led ad-hoc groups that enabled cancer advocates to keep abreast and weigh in on important issues like comparative effectiveness. Their leadership, particularly Jeff Allen, is top notch. Highly effective, thorough and trustworthy.


Expert Comments: Organization Strengths

Select the boxes to display the results according to expert type.

Show:
X
Foundation Professionals (F)
X
Researchers and Faculty (R)
X
Nonprofit Senior Staff (N)
X
Other (consultants, journalists, policy makers) (O)

Good Staff and Leadership

N
They have great staff and leadership.

Good Leadership and Good Use of Resources

O
The leadership of this organization is excellent, has built a small professional and competent staff, and has attracted the dedicated service of some very good professional and lay volunteers. The organization works within its budget, attracts a diversified range of funding, and has matured to the point that the ongoing work of the organization is not dependent on any one individual.


Expert Comments: Areas for Improvement

Select the boxes to display the results according to expert type.

Show:
X
Foundation Professionals (F)
X
Researchers and Faculty (R)
X
Nonprofit Senior Staff (N)
X
Other (consultants, journalists, policy makers) (O)

Diversity of Funds

N
They should diversify their funding base.
O
They should further diversification of funding sources and accumulation of a larger cash reserve to insure continuity of operations during funding cycle downturns.

Improve Messaging

N
They are better known for their Chair & Founder than for anyone else on their staff or any of the projects they do.


Leadership


Ellen V. Sigal/ Jeff Allen
Chairperson and Founder/Executive Director
Ellen V. Sigal, PhD, is Chairperson and Founder of Friends of Cancer Research (Friends), a cancer research think tank and advocacy organization based in the Washington, DC.

Friends is a leader in developing partnerships and advocating for policies that will get treatments and therapies to patients in the safest and quickest way possible. Friends works with federal health agencies, Congressional leadership, academic research centers and private sector industry producing real results.

Dr. Sigal is Vice Chair of the inaugural board of directors of the Reagan‐Udall Foundation, a partnership designed to modernize medical product development, accelerate innovation, and enhance product safety in collaboration with the U.S. Food and Drug Administration. She serves on the Board of the Foundation for the National Institutes of Health where she chairs its Public‐Private Partnerships Committee.

In 2010, Dr. Sigal was appointed to a six year term on the Board of Governors of the Patient Centered Outcomes Research Institute (PCORI) as a representative of patients and health consumers.

She also holds leadership positions with a broad range of cancer advocacy, public policy organizations, and academic health centers including: the American Association for Cancer Research Foundation Board; Research!America Board; M. D. Anderson Cancer Center External Advisory Board, the Duke University Cancer Center Board of Overseers, and The Sidney Kimmel Comprehensive Cancer Center Advisory Council.

During her more than twenty year commitment to cancer research, Dr. Sigal has served in a number of critical public positions. She served on the National Cancer Institute Board of Scientific Advisors from 2003‐2009, and the National Institutes of Health Director’s Council of Public Representatives from 2003−2006. She was a Presidential Appointee to the National Cancer Advisory Board from 1992‐1998, where she chaired the Budget and Planning Committee that oversees the federal cancer budget. In 1998, Dr. Sigal was named Vice Chairman of the Board of The March, a national grassroots advocacy group that brought thousands of volunteers to Washington to liaise with Congress and to set a new advocacy agenda for cancer research and treatment. She is a past member of the American Society of Clinical Oncology Foundation Board. Dr. Sigal has also been instrumental in harnessing the energies of Hollywood on behalf of cancer research, serving as President of The Creative Community Task Force for Cancer Research."Ellen V. Sigal, PhD, is Chairperson and Founder of Friends of Cancer Research (Friends), a cancer research think tank and advocacy organization based in the Washington, DC.

Friends is a leader in developing partnerships and advocating for policies that will get treatments and therapies to patients in the safest and quickest way possible. Friends works with federal health agencies, Congressional leadership, academic research centers and private sector industry producing real results.

Dr. Sigal is Vice Chair of the inaugural board of directors of the Reagan‐Udall Foundation, a partnership designed to modernize medical product development, accelerate innovation, and enhance product safety in collaboration with the U.S. Food and Drug Administration. She serves on the Board of the Foundation for the National Institutes of Health where she chairs its Public‐Private Partnerships Committee.

In 2010, Dr. Sigal was appointed to a six year term on the Board of Governors of the Patient Centered Outcomes Research Institute (PCORI) as a representative of patients and health consumers.

She also holds leadership positions with a broad range of cancer advocacy, public policy organizations, and academic health centers including: the American Association for Cancer Research Foundation Board; Research!America Board; M. D. Anderson Cancer Center External Advisory Board, the Duke University Cancer Center Board of Overseers, and The Sidney Kimmel Comprehensive Cancer Center Advisory Council.

During her more than twenty year commitment to cancer research, Dr. Sigal has served in a number of critical public positions. She served on the National Cancer Institute Board of Scientific Advisors from 2003‐2009, and the National Institutes of Health Director’s Council of Public Representatives from 2003−2006. She was a Presidential Appointee to the National Cancer Advisory Board from 1992‐1998, where she chaired the Budget and Planning Committee that oversees the federal cancer budget. In 1998, Dr. Sigal was named Vice Chairman of the Board of The March, a national grassroots advocacy group that brought thousands of volunteers to Washington to liaise with Congress and to set a new advocacy agenda for cancer research and treatment. She is a past member of the American Society of Clinical Oncology Foundation Board. Dr. Sigal has also been instrumental in harnessing the energies of Hollywood on behalf of cancer research, serving as President of The Creative Community Task Force for Cancer Research./

Jeff Allen, Ph.D. serves as the Executive Director of Friends of Cancer Research (Friends), a cancer research think tank and advocacy organization based in the Washington, D.C. area. Working with the entire cancer research and advocacy community, Friends pioneers innovative public‐private partnerships, organizes critical policy forums, educates the public, and brings together key stakeholders to overcome the barriers standing between patients and the most promising cancer treatments.

   Prior to joining Friends, Dr. Allen was an endocrinology fellow in the Laboratory of Clinical Investigation of the National Center for Complementary and Alternative Medicine at the National Institutes of Heath.  His background in cancer research focused upon molecular changes associated with cancer formation as well as treatments to prevent cancer progression. Dr. Allen has been published in numerous medical journals, including his work relating to prostate cancer, in AACR’s “Cancer Research.”

   Dr. Allen serves on C‐Change’s Chemoprevention Advisory Committee, Patent Law Advisory Subcommittee and the Clinical Trials and Biomarker Workgroup. Allen is also a member of the National Health Council FDA Issue Team, serves on the Global Access Project of the National Patient Advocacy Foundation, and was recently named to the National Cancer Institute Director’s Consumer Liaison Group federal advisory committee.  Jeff is also a foremost expert on Comparative Effectiveness Research and recently served as the organizing author of a 2009 report, ""Improving Medical Decisions Through Comparative Effectiveness Research: Cancer as a Case Study"" co‐authored by a 25 member academic committee."

From the Nonprofit



Dec 19, 2011
For the list of our full board member, click here


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