Lung Cancer Alliance (LCA) (Lung Cancer)

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Lung-cancer-alliance-lca-lung-cancer
Headquarters Location: Washington, DC
Founded: 1997


Mission: Lung Cancer Alliance’s mission is to reverse decades of stigma and neglect by empowering those with or at risk for the disease, elevating awareness and changing health policy.


Tags: cancer, lung cancer, awareness, health policy, strategic partnerships, support, advocacy, 2011



Lung-cancer-alliance-lca-lung-cancer
Story: Lung Cancer is a disease that begins in the tissue of the lungs. The lungs are sponge-like organs that are part of the respiratory system. During breathing, air enters the mouth or nasal passage and travels down the trachea. The… Read the full story.

Expert Reviews: Evidence of Impact
The Lung Cancer Alliance has been effective in increasing the flow of money towards lung cancer funding. It has also had a strong influence over Congressional decisions and policy changes.
See the complete expert review.

Leadership
Lung-cancer-alliance-lca-lung-cancer Laurie Fenton Ambrose. Laurie Fenton Ambrose is the President and Chief Executive Officer of Lung Cancer Alliance (LCA) responsible for managing the overall mission and strategic direction of organization. Hired as LCA’s first President in 2004, Laurie has managed LCA’s relocation, restructuring and realignment from a west coast-based operation to its current headquarters in Washington, DC. Today, LCA is nationally and internationally recognized… See full bio.


Transparency Information
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This organization has earned the GuideStar Exchange Seal, demonstrating its commitment to transparency (learn more)


Financial Data
Overhead Ratio:
19.52%
Total Revenue:
$2,303,967


From the Nonprofit
The nonprofit has not added any comments yet. If you are a representative of this nonprofit and would like to leave a comment, please email us at feedback@myphilanthropedia.org with your request.


Contact Info
E-Mail:
info AT lungcanceralliance.org
Phone:
202-463-2080       
Facebook:
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Address:
888 16th Street, N.W., Suite 150
 
Washington, DC 20006, USA
Twitter:
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Lung-cancer-alliance-lca-lung-cancer Story: Lung Cancer is a disease that begins in the tissue of the lungs. The lungs are sponge-like organs that are part of the respiratory system. During breathing, air enters the mouth or nasal passage and travels down the trachea. The trachea splits into two sets of bronchial tubes that lead to the left and right lung. The bronchi branch off into smaller and smaller tubes that eventually end in small balloon-like sacs known as alveoli. The alveoli are where oxygen, carbon dioxide, and other substances are exchanged between the lungs and the blood stream. The vast majority of Lung Cancer cases fall into one of two different categories: Non-Small Cell Lung Cancer is the most common type of Lung Cancer, making up nearly 85% of all cases. This type of Lung Cancer grows and spreads more slowly than small cell lung cancer. Non-small cell lung cancer is divided into three different subcategories. Squamous cell carcinoma originates in the thin, flat cells that line the passages of the respiratory tract. Adenocarcinoma begins in the cells that form the lining of the lungs. Large cell carcinomas make up a group of cancers that look large and abnormal under a microscope. Small Cell Lung Cancer makes up nearly 20% of all Lung Cancer cases. It is associated with cancer cells smaller in size than most other cancer cells. These cells may be small, but they can rapidly reproduce to form large tumors. Their size and quick rate of reproduction allows them to spread to the lymph nodes and to other organs of the body. This type of Lung Cancer is almost always caused by smoking or second hand smoke. Another type of tumor, called carcinoid, can occur in the lung. For more information, please visit the following external website.

Expert Reviews of Lung Cancer Alliance (LCA) (Lung Cancer)

Evidence of Impact Summary:

The Lung Cancer Alliance has been effective in increasing the flow of money towards lung cancer funding. It has also had a strong influence over Congressional decisions and policy changes.
See expert comments.

Organization Strengths Summary:

According to experts, the organization's greatest strengths are its unique ability to affect policy and its dedicated leadership.
See expert comments.

Areas for Improvement Summary:

The major criticisms of the Lung Cancer Alliance are that the group should spend more time raising awareness on the issue and on new developments in lung cancer research and that it should be more collaborative with other groups.
See expert comments.

Expert Comments: Evidence of Impact

Select the boxes to display the results according to expert type.

Show:
X
Foundation Professionals (F)
X
Researchers and Faculty (R)
X
Nonprofit Senior Staff (N)
X
Other (consultants, journalists, policy makers) (O)

Help Funding of Lung Cancer

F
LCA is focused on lobbying in Washington DC to get more federal funding for lung cancer research. They generate good increased awareness around the under-funding for lung cancer research.
N
Lung Cancer Alliance is a wonderful organization that focuses on correcting the injustice of the underfunding of Lung Cancer. Their presence in Washington, D.C. is enormously helpful.

Strong Impact on Policy

N
Lung Cancer Alliance is an effective organization in impacting policy to improve research and access to early detection and screening for lung cancer patients and those not yet diagnosed. They were active in pushing the NCI to undertake the NLCST which showed increased survival using spiral CT and to quickly move this option to the public as an accepted screening methodology.
N
The lung cancer alliance is strong on the policy side and is a significant voice for patients in DC.
N
They have a strong advocacy posture in the face of Congress.

Small but Effective Organization

N
This is a small organization, but it is well informed, collaborative, and engaged on all levels.


Expert Comments: Organization Strengths

Select the boxes to display the results according to expert type.

Show:
X
Foundation Professionals (F)
X
Researchers and Faculty (R)
X
Nonprofit Senior Staff (N)
X
Other (consultants, journalists, policy makers) (O)

Strong Focus on Advocacy

F
Their connections and experience working within Congress are very good. They also have a very good patient support network.
N
One of its greatest strengths is its broad and deep experience as an advocacy organization dealing with government bureaucracy. Its leadership and staff was able to push thru a $10M appropriation for the study of Lung Cancer.

Great Leadership

N
Laurie Fenton, the president, is one of the most wonderful and caring and persistent advocates for Lung Cancer. Also Sheila Ross, one of the founders, is part of this dynamic duo. Their leadership will have and does have an impact on convincing government officials to put as much money into Lung Cancer, the #1 cancer killer as breast and prostate. If this can be done, lung cancer's survival rate will be up in the 90s with these two other cancers. Their strength in pursuing this goal is helpful to the entire lung cancer community.
N
Its leadership is its greatest strengths.
N
They have a strong involvement on the legislative side, strong leadership, and solid operations.


Expert Comments: Areas for Improvement

Select the boxes to display the results according to expert type.

Show:
X
Foundation Professionals (F)
X
Researchers and Faculty (R)
X
Nonprofit Senior Staff (N)
X
Other (consultants, journalists, policy makers) (O)

More Collaborative Efforts

F
They have a tendency to isolate from the rest of the lung cancer community of foundations rather than trying to leverage the constituents of all of the foundations in order to have a greater impact on federal funding.

More Staff

N
I believe if they could hire more staff they could grow nationally and have more impact across all 50 states.

More National Fundraising

N
The reach of the Lung Cancer Alliance could be greater in all areas - especially education and research - with additional funds.
N
They should become more involved and aware of new treatments, trials, and research opportunities to educate congress . They could also help with broader national fundraising campaigns.

Raise More Awareness

N
They could do more on the awareness side to help remove the stigma associated with this disease.
N
The major criticisms of the Lung Cancer Alliance are that the group should spend more time raising awareness on the issue and on new developments in lung cancer research and that it should be more collaborative with other groups.


Leadership

Lung-cancer-alliance-lca-lung-cancer
Laurie Fenton Ambrose
President
Laurie Fenton Ambrose is the President and Chief Executive Officer of Lung Cancer Alliance (LCA) responsible for managing the overall mission and strategic direction of organization. Hired as LCA’s first President in 2004, Laurie has managed LCA’s relocation, restructuring and realignment from a west coast-based operation to its current headquarters in Washington, DC. Today, LCA is nationally and internationally recognized as the premier non-profit dedicated solely to patient support and advocacy for those living with or at risk for lung cancer. Laurie is responsible for overseeing the creation and implementation of LCA’s patient empowerment programs, public health policy agenda and national grassroots and awareness initiatives. Laurie is also LCA’s primary liaison to community and government leaders, national media, collaborating agencies, health care professionals, and other strategic alliances. Laurie brings almost two decades of public policy experience to LCA having served in senior management positions in both the legislative and executive branches of government. Prior to joining LCA, Laurie was tapped to serve as the first Chief of Staff to United States Department of Commerce Secretary Don Evans, where she helped set the strategic and policy direction of the Department in the first years of the Bush Administration. Before serving in the Commerce Department, Laurie worked for 6 years in the United States Senate as Chief of Staff to Senator Jon Kyl (R-AZ). Prior to her work in the Senate, Laurie served 11 years in the House of Representatives, 6 as Chief of Staff to Congressman Jim Kolbe (R-AZ), and the remaining as Legislative Assistants to Congressman Amo Houghton (R-NY) and Congressman Edward Madigan (R-IL). Laurie has also served in the private sector as Federal Relations Director for Honeywell. Laurie is a graduate of The George Washington University and Harvard’s Kennedy School of Government Senior Management in Government Executive Program. Laurie was inspired to join LCA by her friend and associate Sheila Ross, a two time lung cancer survivor.

From the Nonprofit

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