Fight Colorectal Cancer (Colorectal Cancer Coalition) (Colorectal Cancer)

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Fight-colorectal-cancer-colorectal-cancer-coalition-colorectal-cancer
Headquarters Location: Alexandria, VA
Founded: 2005


Mission: Fight Colorectal Cancer is the leading colorectal cancer advocacy organization in Washington, DC, empowering survivors to raise their voices, training advocates around the country, and educating lawmakers and pushing them for better policies.


Tags: cancer, colorectal cancer, advocacy, education, support, patient, family members, caregivers, resource, research, 2011


Fight-colorectal-cancer-colorectal-cancer-coalition-colorectal-cancer
Story: Colon and rectal cancer can be prevented! By finding and removing precancerous polyps (adenomas) that can develop into cancer, colorectal cancer can be stopped before it ever starts. In addition, screening can detect colorectal cancer early when it is most… Read the full story.

Expert Reviews: Evidence of Impact
The Colorectal Cancer Coalition (Fight Colorectal Cancer) has an extraordinary ability to impact legislation and spark important changes in legislation related to research and services for colorectal cancer.
See the complete expert review.

Leadership
Fight-colorectal-cancer-colorectal-cancer-coalition-colorectal-cancer Carlea Bauman. Carlea Bauman, President: Carlea brings 20 years of experience in communications, politics and advocacy to Fight Colorectal Cancer. As the National Director of Grassroots Advocacy for the American Diabetes Association (ADA), she directed ADA’s “Call to Congress: Conquer Diabetes,” which brought hundreds of diabetes advocates to Capitol Hill each election year. Prior to that, she was the Press Secretary for the groundbreaking… See full bio.


Transparency Information
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This organization has earned the GuideStar Participation Level Silver, demonstrating its commitment to transparency (learn more)


Financial Data


From the Nonprofit
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Contact Info
E-Mail:
info AT FightColorectalCancer.org
Phone:
703-548-1225
Facebook:
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Address:
1414 Prince Street, Suite 204
 
Alexandria, VA 22314, USA
Twitter:
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Fight-colorectal-cancer-colorectal-cancer-coalition-colorectal-cancer Story: Colon and rectal cancer can be prevented! By finding and removing precancerous polyps (adenomas) that can develop into cancer, colorectal cancer can be stopped before it ever starts. In addition, screening can detect colorectal cancer early when it is most curable. All adults over the age of 50 are at risk for colorectal cancer and should be screened for adenomatous polyps and cancer. Some people have a greater than average risk and should work with their doctor to develop an individualized screening plan. While screening is the most important way to prevent colorectal cancer, there are lifestyle changes that can reduce your risk for polyps and colorectal cancer. Most polyps grow on the end of a stalk, somewhat like a mushroom. When they get larger than the eraser on the end of a pencil (5 millimeters, their cells can gradually change to cancer. Other polyps lie flat against the wall of the colon and are called sessile. Not all polyps will become cancer, but it is important to remove them because we can’t tell which ones will remain harmless and which will become cancerous. Screening can also find dangerous lesions that are not polyps. Nonpolypoid colorectal neoplasms (NP-CRNs) are flat lesions in the colon that can be missed unless doctors look carefully for them, often using special colonoscopy techniques. One study found them in almost ten percent of patients who had a colonoscopy. While over 90 percent of colon and rectal cancers are found in people over the age of 50, anyone at any age can get colorectal cancer. People younger than 50 need to protect themselves by knowing their family cancer history and their own medical history. People with a family history of certain cancer or with certain medical conditions may need to begin colonoscopy screening earlier and be tested more often. In addition, everyone, no matter how old they are, needs to know the symptoms of colorectal cancer and have a complete colonoscopy to rule out cancer if they have symptoms.

Expert Reviews of Fight Colorectal Cancer (Colorectal Cancer Coalition) (Colorectal Cancer)

Evidence of Impact Summary:

The Colorectal Cancer Coalition (Fight Colorectal Cancer) has an extraordinary ability to impact legislation and spark important changes in legislation related to research and services for colorectal cancer.
See expert comments.

Organization Strengths Summary:

This organization has been effective because of its powerful leadership and its ability to make the best out of its limited resources.
See expert comments.

Areas for Improvement Summary:

Experts have noted that Fight Colorectal Cancer could improve by seeking greater capacity and widening its reach and visibility across the nation.
See expert comments.

Expert Comments: Evidence of Impact

Select the boxes to display the results according to expert type.

Show:
X
Foundation Professionals (F)
X
Researchers and Faculty (R)
X
Nonprofit Senior Staff (N)
X
Other (consultants, journalists, policy makers) (O)

Good Services for Patients

N
Fight Colorectal Cancer has an excellent track record of patient education and advocacy. They are beginning to get involved in funding research as well.
N
They have highly effective public interest and patient services work.
O
This organization is far better than most at blending compassionate assistance to individual patients and family members with a sophisticated technical understanding of the disease, treatment options, and technically complex policy issues.

Strong Influence on Policymaking and Legislation

O
In the 6 years since Fight Colorectal Cancer was founded, they have had an impact in areas where nothing had been done before: 1. They obtained and kept Department of Defense funding for colorectal cancer research, a challenge in the current fiscal environment. Fight Colorectal Cancer led the charge to maintain funding; 2. The funded research directly through Lisa Fund-AACR grants, increasing the number of awards in 2012; 3. They worked with FDA for the past 4 years on leucovorin drug shortage and pushed to allow importation which is currently allowed; 4. They supported patient advocates who volunteer with the publicly-funded research network that develops and conducts clinical trials; 5. They engaged in leadership committees with national and international efforts to streamline clinical research process while maintaining patient protection; 6. They trained grassroots advocates to lobby Congress effectively through annual national meetings and Hill visits; 7. They worked with Hill offices to get a national screening program (based on the 20 year old breast-cervical screening program) introduced to both the House and the Senate this year.
N
They have had an impact on policy, legislative support, and education.

Help Fund Research

N
They are able to impact federal funding for colorectal cancer and have succeeded in seeing legislation introduced and funding increased.
N
Fight Colorectal Cancer was responsible for securing millions of dollars for new research through their work on Capitol Hill. They were instrumental in getting colorectal cancer screenings included in health care reform. The organization was sited as providing the best information for patients about the new KRAS findings (regarding EGFR efficacy) when it came out in 2008. Currently is leading the way in keeping patients informed about the leucovorin and 5-FU shortages. They also directly fund research. In the six years of their existence, they have provided four research grants totaling $150,000.

Well Informed

N
They are well informed, vocal, and professional.

Impact in their Work

O
They have evidence of impact.


Expert Comments: Organization Strengths

Select the boxes to display the results according to expert type.

Show:
X
Foundation Professionals (F)
X
Researchers and Faculty (R)
X
Nonprofit Senior Staff (N)
X
Other (consultants, journalists, policy makers) (O)

Strong Leadership

N
Carlea Bauman really knows Washington and how to communicate with leaders, as well as the community she represents.

Great Reputation

O
This is a very small, new organization which has accomplished more for its constituents than many larger, older organizations thanks to strong leadership which supports and develops an excellent staff. I hear very good feedback from individuals and organizations that interact with them. They have an excellent reputation and have policies and practices in place to ensure that all conflicts of interest are disclosed (for example, in FDA testimony) and that all data shared with constituents is objective rather than framed through a company's lens.

Great Staff

N
They have a strong advocacy staff and an effective volunteer structure.
N
They are strong because of their board leadership, staff leadership, and staff.

Good Leadership and Good Use of Resources

N
Their leadership and efficiency are their strengths.
O
The leadership of this organization is excellent, has built a small professional and competent staff, and has attracted the dedicated service of some very good professional and lay volunteers. The organization works within its budget, attracts a diversified range of funding, and has matured to the point that the ongoing work of the organization is not dependent on any one individual.


Expert Comments: Areas for Improvement

Select the boxes to display the results according to expert type.

Show:
X
Foundation Professionals (F)
X
Researchers and Faculty (R)
X
Nonprofit Senior Staff (N)
X
Other (consultants, journalists, policy makers) (O)

Higher Visibility

N
Their marketing could be better. Still too few people know about the amazing services they provide!

Greater Capacity

O
Advocacy organizations need numbers to have the most significant impact on national policy. They also need additional capacity: they have ambitious goals which need additional capacity to be met.
N
The group has limited staff capacity. It would benefit from a stronger bullpen.
N
It could improve capacity to do more work.

Wider Reach

N
This non-profit could expand its reach (thus expanding its impact) with more aggressive public relations and communications to increase its grassroots base.

Diversity of Funds

O
They should further diversification of funding sources and accumulation of a larger cash reserve to insure continuity of operations during funding cycle downturns.


Leadership

Fight-colorectal-cancer-colorectal-cancer-coalition-colorectal-cancer
Carlea Bauman
President
Carlea Bauman, President: Carlea brings 20 years of experience in communications, politics and advocacy to Fight Colorectal Cancer. As the National Director of Grassroots Advocacy for the American Diabetes Association (ADA), she directed ADA’s “Call to Congress: Conquer Diabetes,” which brought hundreds of diabetes advocates to Capitol Hill each election year. Prior to that, she was the Press Secretary for the groundbreaking Florida “Truth” Campaign, an initiative that resulted in a 10 percent drop in teen smoking within a single year. Her passion for health advocacy is personal: she lost her mother to diabetes and her father to cancer. Carlea got her start in politics working for the late Florida Governor Lawton Chiles and later at the Democratic Congressional Campaign Committee in Washington, DC. She sits on the Advocacy Board for the Ruesch Center for Gastrointestinal Cancers at the Lombardi Comprehensive Cancer Center. Carlea is a graduate of Florida State University and resides in Northern Virginia with her husband and daughter.

From the Nonprofit

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