Family Caregiver Alliance (FCA)

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Medal-big-2011
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"Up" is the number of experts who agree that the nonprofit has had the most impact in the field. "Down" is the number of experts who disagree that the nonprofit has had the most impact in field.
Family-caregiver-alliance-fca
Headquarters Location: San Francisco, CA
Founded: 1977


Mission: Family Caregiver Alliance is a public voice for caregivers. Their pioneering programs support and sustain the important work of families nationwide caring for loved ones with chronic , disabling health conditions.


Tags: caregivers, information, education, services, research, advocacy, adults with disabilities, aging, alzheimer's, 2011


Family-caregiver-alliance-fca
Story: Dave has Huntington's Disease, which doesn't require "skilled medical care." It does require over $600.00 monthly in medication, food via the feeding tube, and help to bathe or dress. We live on Social Security and I use the food bank… Read the full story.

Expert Reviews: Evidence of Impact
Family Caregiver Alliance has had a positive impact on the lives of family caregivers and has helped raise awareness of the issue of family caregiving.
See the complete expert review.

Leadership
Family-caregiver-alliance-fca Kathleen Kelly. Kathleen Kelly is the Executive Director of Family Caregiver Alliance whose mission is to improve the quality of life for caregivers through services, education, advocacy and research. As Director, she oversees programs of the agency: the National Center on Caregiving, Bay Area Caregiver Resource Center (direct services to families and providers within the San Francisco Bay Area), Statewide Resources Consultant… See full bio.


Transparency Information
Silver-big
This organization has earned the GuideStar Participation Level Silver, demonstrating its commitment to transparency (learn more)


Financial Data
Total Revenue:
$1,606,954


From the Nonprofit


Nov 02, 2011
We are so honored to be included in the illustrious list of high-impact national organizations in aging, and we appreciate the recognition of FCA’s pioneering programs and services! Although we have grown in many ways, our history reflects our focus… Read More.



Contact Info
E-Mail:
info AT caregiver.org
Phone:
415-434-3388
Facebook:
Follow_fb
Address:
180 Montgomery St Ste 1100
 
San Francisco, CA 94104, USA


Family-caregiver-alliance-fca Story: Dave has Huntington's Disease, which doesn't require "skilled medical care." It does require over $600.00 monthly in medication, food via the feeding tube, and help to bathe or dress. We live on Social Security and I use the food bank and other charities to provide for my family which includes two teenagers. I have lost my home and am $40,000 in debt. I have been made to prove his feeding tube was inserted for "other than cosmetic reasons." I have dealt with some of the rudest people through social service programs who have suggested I divorce him. Having an orphan disease means there is little support. There is only one neurologist who takes Medicaid here, and he has never had a patient with HD. It is bad enough to watch someone you love die in slow pieces from a disease for which there is no cure. I have lost my best friend, my lover, my other half. Everyday when I leave my forty-six year old husband of seven years in his narrow bed at the nursing home, he looks at me with sad brown eyes. With far fewer benefits I could have kept him at home where he wanted to be till the end. But the rules would not allow for that and I couldn't fight any longer. I know Dave doesn't want to live in a nursing home. I have no choice. Maybe now I can find some of the me I lost while caregiving.

Expert Reviews of Family Caregiver Alliance (FCA)

Evidence of Impact Summary:

Family Caregiver Alliance has had a positive impact on the lives of family caregivers and has helped raise awareness of the issue of family caregiving.
See expert comments.

Organization Strengths Summary:

According to experts, Family Caregiver Alliance has provided high-quality research and advocacy programs. Its staff members have been commended for being knowledgeable and hard-working.
See expert comments.

Areas for Improvement Summary:

Family Caregiver Alliance could increase its scope of effectiveness with more developed advocacy programs.
See expert comments.

Expert Comments: Evidence of Impact

Select the boxes to display the results according to expert type.

Show:
X
Foundation Professionals (F)
X
Researchers and Faculty (R)
X
Nonprofit Senior Staff (N)
X
Other (consultants, journalists, policy makers) (O)

Strong Programs

N
Their impact is on national policy and programs.
N
This organization has produced over thirty years of leading edge consumer and professional education, academic research, policy, advocacy, and direct services and supports on behalf of family caregivers of the adult and aging population. They put the term family caregivers on the map. They have an incredibly strong finance base, leadership has been consistent, and programs such as the National Family Caregiver support program are a direct result of their leadership and modeling in the field through the CA Caregiver Resource Centers.

Raising Awareness

O
FCA has raised awareness about the concerns of family care giving at the local, state, and national levels. It has led the field in creating services, educating families, policymakers, professionals and others about the issue, articulating policy needs, and identifying the need for research, services, and public policy.

Great Resource for Other Programs

R
They are a wonderful resource in terms of national statistics on care giving and the impact of care giving on families. They also fund and recognize unique care giving support programs.

Helpful to Family Caregivers

F
They have had a significant impact on addressing the needs of family caregivers and are one of the first in field to do so. They are data-driven and have a strong advocacy agenda.
R
They are a key resource to use for finding stats on care giving, impact of care giving on quality of life, support for caregivers, including financial, emotional, respite, etc. They offer funding opportunities to support smaller agencies with care giving support programs.
F
They have produced a lot of quality materials for caregivers and practitioners and have a lot of impact on policy.

Understand Issues on the Ground

R
They are a very strong caregiver association. They have historical commitment to the issue. They understand the issues on the ground.

Professional & Effective

N
My impression is that FCA is the most professional and effective of the national family caregiver organizations.

Set the Standard

R
They are a solid important organization that has set the standard. They are inclusive with a great web presence as well.


Expert Comments: Organization Strengths

Select the boxes to display the results according to expert type.

Show:
X
Foundation Professionals (F)
X
Researchers and Faculty (R)
X
Nonprofit Senior Staff (N)
X
Other (consultants, journalists, policy makers) (O)

Skilled in Research and Advocacy

N
This organization has been around for 30 years and has had a great impact on national family care giving policy and programs. The agency has strong leadership, research and advocacy skills.
O
FCA has grown from a grass roots local program to a highly effective national leader. In doing so, it has nurtured and mentored new leadership—leaders in multiple fields and venues have “cut their teeth” at FCA. Their approaches to outreach and advocacy have served as a model for other non-profits for many years. They have for example set the bar in using Web technology.

Knowledgeable Staff

R
They have a top notch staff who is willing to make presentations at national and regional conferences. They are very well-informed about the care giving literature.
F
They have a strong leadership and staff.

Great Website

R
They have a great website and materials.

Great Leadership and Staff

R
Strong Leader


Expert Comments: Areas for Improvement

Select the boxes to display the results according to expert type.

Show:
X
Foundation Professionals (F)
X
Researchers and Faculty (R)
X
Nonprofit Senior Staff (N)
X
Other (consultants, journalists, policy makers) (O)

Stronger Focus on Advocacy

N
They could develop more grassroots base for policy advocacy, or they could open an office in DC to have more of a direct influence on national care giving policy.



Leadership

Family-caregiver-alliance-fca
Kathleen Kelly
Executive Director
Kathleen Kelly is the Executive Director of Family Caregiver Alliance whose mission is to improve the quality of life for caregivers through services, education, advocacy and research. As Director, she oversees programs of the agency: the National Center on Caregiving, Bay Area Caregiver Resource Center (direct services to families and providers within the San Francisco Bay Area), Statewide Resources Consultant (technical assistance and consultation to the statewide system of Caregiver Resource Centers) and other research and program initiatives of the agency. During her tenure with Family Caregiver Alliance, Ms. Kelly has held seats on a variety of national, state and local advisory committees of concerned with long-term care policy and service delivery practices. Currently she is directing two special projects: a feasibility study on inclusion of respite benefits under Medicaid in California for the California Department of Mental Health funded by CMS and the Northern California Rural Caregiver Education Collaborative funded by the Bristol-Meyers Squibb Foundation. Recently, Ms. Kelly has been focusing on the integration of information technologies with service delivery to family caregivers. Of special interest, she oversees the development of the agency's technology initiatives: FCA's award-wining website (www.caregiver.org); Link2Care, an Internet-based program of interactive direct services to caregivers integrated with the Caregiver Resource Centers; consumer education using video conferencing, telephone conferencing and web broadcasting; implementation of a web-based client record, service utilization and service cost information system across the California CRC system; and other technology projects under development. She has lectured extensively on family caregiving, long-term care, advocacy, policy development, service delivery, information technology and nonprofit management. Ms. Kelly has authored or co-authored numerous articles on caregiving and information technology and has extensive experience in working with the media and policy makers on caregiving issues. Ms. Kelly holds a Master of Public Administration, Health Services Management from Golden Gate University.

From the Nonprofit



Nov 02, 2011
We are so honored to be included in the illustrious list of high-impact national organizations in aging, and we appreciate the recognition of FCA’s pioneering programs and services! Although we have grown in many ways, our history reflects our focus on supporting families on their caregiving journey.

In 1977, before “Alzheimer’s” was a household word and decades before the stresses of family caregiving were recognized in the media, a grassroots San Francisco organization called Family Survival Project saw the need for support services for families coping with the effects of traumatic brain injury, stroke, “senile dementia,” Parkinson’s disease and other chronic and debilitating ailments that affected adults.

These conditions robbed individuals of their independence, their incomes, and their productivity, and they robbed their families of companionship, freedom and financial security. The illnesses received little public recognition and were discussed in whispers among family members.

Much has changed in the 30+ years since then. Family Survival Project became Family Caregiver Alliance, the first community-based nonprofit organization to systematically address the needs of families providing long-term care at home. FCA was the model for a statewide system of Caregiver Resource Centers—the first in the country--and model for caregiver support programs nationally.

FCA initiated services, educational programs and publications based on expressed caregiver needs; all services are free or low-cost. As one of the earliest social service agencies to utilize the Internet, the website offers a wealth of caregiving advice and resources, fact sheets, research reports, policy updates, newsletters, discussion groups, and the Family Care Navigator.

In 2001, the National Center on Caregiving was established at Family Caregiver Alliance to advance the development of high-quality, cost-effective policies and programs for caregivers in every state in the country.

Read what the experts said about Family Caregiver Alliance HERE. To learn more about FCA, visit the website at www.caregiver.org.


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